November 19

The view from Dean's new room. The room in the ICU just looked out into other rooms of the hospital.

December 6

It's kind of a gloomy day today. :( 

Dean saw his pediatrician this morning (she was the one that sent us go to the ER and then Children's)- he weighs 6lbs 8 ozs!! :D He sees the cardiology team again on thursday. Hopefully something will be crossed off the "things dean might have" list. 

I know that he was/is really sick, but his doctor said that she really didn't think she would see him again..and that really got to me today. So, I want to thank you all again for your thoughts and prayers. It really does mean so much to me. He really had people pulling for him. :) Love you all.

November 25

Had a home nurse come in this morning and check in on Dean. She just listened to his heart and lungs and weighed him. He has gained about 4 ounces since being released (he's about 5lbs 5 ounces today), still not as his birth weight (5lbs 14ozs) tho, but it's good to know his formula is making him gain weight. He's now on a high calorie formula mix to help him, but they were concerned that his diuretics would mean they would have to increase the calories even more on Tuesday when we follow up at the clinic. It doesn't look like they'll have to do that if he's still gaining. Nurse will come again on Sunday to check in again. :)

November 24

I just wanted to make sure I thanked everyone for all their happy thoughts and prayers these past few weeks. We have had a wonderful day of food and cuddling and I'm so happy to have Dean home (Thanksgiving + dean in moby wrap = me in heaven :D). I love you all!!

Happy Thanksgiving!!!!!! :D

November 23

Dean is now home. :) it took forever for them to discharge him, but we made it home safely. :)

November 21

I had an appointment today with one of the nurses from the Heart Failure Team (they are the main team that is taking care of Dean, he doesn't have heart "failure" but their team deals with a wide variety of patients). They are going to remove Dean's feeding tube tomorrow because he has taken all his bottles by mouth! They want to leave it in another day because they want to make sure that he takes all of his medicines by mouth for the whole day. Providing that he continues to take his medicine, as well as eating out of a bottle they are planning on releasing him on Wednesday. No, they still haven't figured out WHY this all happened, they are still waiting on tests to come back - they ran some genetic tests and think that, depending on the results, might want to test myself and the girls at some point. However, these tests take time. So, they are treating the issues that have been presented and he's made fabulous progress.

Anyways......to recap: Dean's doing great and they are planning on releasing him Wednesday. Happy Thanksgiving to us!!!

November 20

I haven't updated in a couple of days...Dean is doing great! He is off of all his IV infusions, off of his antibiotics, and they are transitioning him to meds that he can take orally, at home. He is still on a bit of oxygen, should be off of it soon. They are tweaking his diuretics, trying to insure that he doesn't get any more fluids in his lungs, and they are putting some formula powder in the breast milk to try to give him more calories to get him to gain some weight- Two nights ago he was 5lbs 6ozs. We are still waiting for some immunology tests to come back, those should be in later this week. They still can't give us a definitive answer as to why this has happened, but he is much better and improving with all of the steps they have taken here. We hope to have Dean home with us soon, the trips to the hospital have been taking its toll on us.