Newest Trip to Boston

We spent a VERY long day in Boston today.

The advantages to scheduling all his appointments on one day:
1. Only have to leave the house at 5:30am one day a month
2. Only have to have blood drawn once
3. Only have to endure the horribleness that is Boston drivers once

The disadvantages to scheduling all his appointments on one day:
1. Being at the hospital for 5+ hours
2. Trying to get the kids (whichever ones are with me) to be calm during the very boring appointments
3. Myself having to sit through the appointments (very trying on my nerves)

I imagine there are probably a bunch of other reasons for it, but those are just off the top of my head.  It's torture, plain and simple.  But, i'd rather endure it once then to go back the following week and do it again.

ANYWAY!!!

Today, we had:

7:30 appointment 

8am echo, then EKG

9am appointment with cardiology

10:30 with nutrition

11 appointment with metabolism

Dean weighed 15lbs 3ozs!!!!  We are slowly making progress to the bottom of the growth chart!!!  Proportionally tho, he's at the 15th percentile, which means that he is just tiny. I haven't had any news on the labs (usually takes a day or two before I hear anything) but there was indication that his echo showed slight improvement, which means that his new meds (he is on 8 now, soon to be 9 different meds) are working.

So, good news today! :D